Wednesday, April 15, 2009

Autism Speaks, It's Time To Listen

If you're like me when you hear the word autism you think of Rain Man. Either that or I think of children who are completely unable to speak or relate to others. What I didn't know were the facts. Did you know there is an Autism Spectrum? I guess I didn't know because it has never effected me personally until now.

Autism is a complex neurobiological disorder that typically lasts throughout a person's lifetime. It is part of a group of disorders known as autism spectrum disorders (ASD). Today, 1 in 150 individuals is diagnosed with autism. Autism impairs a person's ability to communicate and relate to others. It is also associated with rigid routines and repetitive behaviors, such as obsessively arranging objects or following very specific routines. Symptoms can range from very mild to quite severe.

There are 5 developmental disorders in the spectrum. They are Autism, Asperger Syndrome, Rett Syndrome, Childhood Disintegrative Disorder and Pervasive Developmental Disorder Not Otherwise Specified. Currently, there are no effective means to prevent autism, no fully effective treatments, and no cure. Research indicates, however, that early intervention in an appropriate educational setting for at least two years during the preschool years can result in significant improvements for many young children with autism spectrum disorders.

We were recently told that Jarrett has Pervasive Developmental Disorder Not Otherwise Specified. PDD-NOS is a condition on the spectrum that has those with it exhibiting some, but not all, of the symptoms associated with classic autism. That can include difficulty socializing with others, repetitive behaviors, and heightened sensitivities to certain stimuli. I am getting most of this information from http://www.autismspeaks.org/. If you want more information on Jarrett's disorder please go to http://www.autismspeaks.org/navigating/pdd_nos.php.

What we need most is your support and understanding. I'm not making excuses for his behavior I'm just letting you know what's going on with us. We are hopeful that with the appropriate therapy we will see improvements. Jarrett is a good kid. He is very loving and likes the things most 4 year olds do. He is for the most part a normal kid. He just has difficulty socially and has some heightened sensitivities to light and sound. It is always good to ask him if it is ok to hug him, hold his hand or whatever. He likes to know what is going to happen before it happens. He doesn't like surprises (for the most part) or loud noises or bright lights. A small group is better than a big group and it is best to be sure you have his attention before telling him something important. If he is angry leave him alone until he cools off. If he doesn't know you very well it will take a while for him to warm up to you. If you have any questions or advice, just call or email me and if something happens during a visit let me know so I can handle it.

Jarrett has been going to preschool through the local school district for a while now and has good days and bad. Thanks to all who have helped us through this difficult time. Please say a prayer for us when you get a chance. That's about enough seriousness for one day. Now back to our regularly scheduled posts.

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